Conquering Your Fibromyalgia Podcast

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Trigeminal Neuralgia Beyond Nerve Pain: Marsha’s Racing, Menopause, and Advocacy Story

The episode explores trigeminal neuralgia as more complex than a simple nerve injury, often overlapping with nociplastic chronic pain features like widespread pain, fatigue, insomnia, and brain fog. Marsha, a longtime off-road racer, recounts an eight-year path to diagnosis after severe electric-shock facial and scalp pain, repeated ER visits, normal imaging, and feeling dismissed as drug-seeking. She describes TN as “torture,” worse than childbirth, and details treatments including carbamazepine, gabapentin, nerve blocks, and gamma knife, which provided about a year of relief but left facial numbness and corneal damage with vision loss. She also has Sjögren’s syndrome, concussion history, anxiety/depression, and discusses perimenopause/menopause timing, hormone therapy trials, and possible ADHD. Racing helps her cope mentally, though symptoms worsen after removing her helmet, and she emphasizes support groups, self-advocacy, and not giving up.

00:00 Trigeminal Neuralgia Beyond Nerves
05:05 Marsha’s First Symptoms
07:26 ER Visits and Misdiagnosis
08:35 Finally Getting a Diagnosis
09:38 Becoming an Advocate
13:49 What TN Feels Like
15:58 Neuropathic vs Nociplastic Pain
17:14 Treatments and Gamma Knife
23:13 Concussions and Early Clues
28:14 Hormones Menopause Connection
36:38 Racing as Therapy
39:23 Daily Management and Race Day Routine
41:42 Racing as Flow State
44:29 Adrenaline and Desert Races
46:46 TN Community and Daily Struggles
48:37 Fatigue Meds and Survival
52:13 Living Without a Cure
55:02 Faith and Being There
56:38 High School Trauma a
Click here for the YouTube channel
International Conference on ADHD in November 2025 where Dr. Lenz will be one of the speakers.
Joy Lenz
Fibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start.
Support the show
When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions
Should You Accept a Fibromyalgia Diagnosis? Evidence-Based Response to “Don’t Accept Fibro” Claims

Dr. Michael Lenz reacts to a naturopath’s claim that fibromyalgia is “not an acceptable diagnosis,” acknowledging that patients often feel invisible and that fibromyalgia is diagnosed by symptoms after ruling out other conditions, but arguing this does not make it illegitimate. He explains fibromyalgia as a nociplastic/central sensitization pain syndrome supported by evidence such as amplified pain signaling on functional neuroimaging, disrupted deep sleep, neurotransmitter differences, and overlap with conditions like IBS, chronic fatigue, migraines, and TMJ. He critiques functional-medicine claims that fibro is primarily due to mold toxicity, food sensitivities, adrenal fatigue, leaky gut, or mitochondrial dysfunction, noting limited or debunked evidence and potential harm from chasing costly “root causes.” He outlines evidence-based, multimodal management: restorative sleep, gentle aerobic exercise and pacing, CBT/pain reprocessing and neuroscience education, addressing ADHD/autism/anxiety, and medications such as SNRIs and gabapentinoids.

00:00 Why This Reaction
01:04 Naturopath Claim Setup
02:07 Invisible Illness Explained
03:12 What She Gets Right
07:31 Why Rejecting Is Harmful
07:49 Real Science Of Fibro
08:39 Functional Triggers List
09:04 Gut Microbiome Claims
13:39 Debunking Pseudodiagnoses
15:05 Evidence Based Treatment Plan
17:46 Should You Accept Diagnosis
18:50 Closing Takeaways
Support the show
When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions
Dr. Iris Manor on ADHD, Trauma, PTSD, and Resilience: Risks, Mechanisms, and Treatment

The host interviews Dr. Iris Manor, a child and adolescent psychiatrist and ADHD researcher, about links between ADHD and traumatic stress disorders, including a Denmark study finding children with ADHD are about 11 times more likely to develop PTSD. Manor distinguishes trauma exposure from traumatic stress disorders and describes behavioral risk (novelty-seeking, impulsivity) and shared neurobiology (hippocampus/ventromedial prefrontal networks, inflammatory cytokines), including possible transgenerational effects of maternal trauma. She argues ADHD and traumatic stress are usually separate but interacting diagnoses, and emphasizes resilience through structure, goals, and avoiding helplessness, noting ADHD makes these harder. She warns clinicians often stop stimulants after trauma despite potential benefit, recommends treating ADHD (and parents’ ADHD), and highlights emotional dysregulation requiring treatment (often guanfacine) to enable ADHD and trauma care. The discussion also covers overlap with chronic pain/fibromyalgia and long COVID, autism-related vulnerability, and disagreement with claims that ADHD is primarily caused by trauma.

00:00 Trauma and ADHD Link
03:11 Why Risk Is Higher
04:02 Biology and Inflammation
08:04 Which Comes First
09:49 Types of Trauma Examples
11:52 National Trauma Risk Groups
15:14 Covid and Chronic Pain
20:42 Resilience Rules and Structure
22:20 Treat ADHD During Trauma
26:39 Family Screening and Care
31:12 ADHD Impact on PTSD Treatment
33:33 Emotional Dysregulation Hierarchy
35:51 Guanfacine for Dysregulation
38:36 Autism Risk and Safety
40:13
Click here for the YouTube channel
International Conference on ADHD in November 2025 where Dr. Lenz will be one of the speakers.
Joy Lenz
Fibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start.
Support the show
When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions
Abdominal Migraines, Weather, and Early Fibromyalgia Clues: Pediatric Case and Listener Feedback

The episode shares insights on fibromyalgia-related problems with a focus on the role of weather and activity in flareups and how symptoms can begin years before an adult fibromyalgia diagnosis. A pediatric case is presented of a 10-year-old boy with intermittent severe upper abdominal pain lasting hours to a day, nausea without vomiting, reduced appetite, and mild to moderate headaches, with no red-flag symptoms (no fever, diarrhea, bloody stools, weight loss, rash, bruising/petechiae, or joint swelling) and a normal physical exam. Family history includes migraines (maternal aunt), fibromyalgia (maternal grandmother), and restless leg/growing pains (father). The diagnosis is abdominal migraines, and the discussion emphasizes treatment approaches including restoring consistent exercise (noting a drop in activity during winter after basketball season), improving sleep regularity, considering coexisting restless leg syndrome and iron deficiency, maintaining a healthy diet, and screening for stressors and untreated ADHD. The episode also discusses how colder weather and shorter days can reduce activity and contribute to symptom worsening, and recommends tracking steps and adapting with indoor activity or appropriate clothing; it notes that extreme cold or heat can trigger fibromyalgia pain flares. Listener feedback includes praise for a five-part ADHD series with Dr. Dodson and a question about finding fibromyalgia care in Tampa, Florida, with guidance to start with primary care and noting rheumatologists often diagnose fibromyalgia after ruling out inflammatory disease.

00:00 Episode Overview
00:37 Pediatric Case Setup
01:54 Key History Questions
04:43 What Changed This Winter
06:42 Exam Findings
07:45 Diagnosis Abdominal Migraine
08:31 Treatment Basics
10:19 Weather Exercise Connection
14:56 Fibromyalgia Early Clues
15:49 Listener Feedback Q&A
16:42 Finding Fibro Care
17:53 Wrap Up and Goodbye
Support the show
When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions
The Hidden Fibromyalgia Epidemic: How Bias Leaves Millions Undiagnosed—and How AI Can Help

The script explains fibromyalgia as a chronic, long-term condition marked by widespread pain, profound fatigue, cognitive difficulties (“fibro fog”), and related mood issues, affecting an estimated 2–4% of the U.S. population (7–14 million) but potentially far more due to underdiagnosis. It describes how the condition is often missed because it is “invisible,” lacks definitive objective tests, and commonly leaves patients in diagnostic limbo for about five years while being dismissed as stressed, depressed, or imagining symptoms. Although the 2016 American College of Rheumatology criteria rely on the Widespread Pain Index and Symptom Severity Score, the script argues diagnosis often fails at the moment clinicians don’t suspect fibromyalgia—driven by longstanding gender and age stereotypes that frame it as a middle-aged women’s disease. It highlights research showing that unbiased application of criteria yields a much closer gender split (about 59% female, 41% male), and that many more men report symptoms than receive diagnoses. The script centers on a study of over 21,000 pain-clinic patients who completed tablet questionnaires with a digital body map; an AI clustered pain patterns into nine groups and identified a “widespread heavy” cluster strongly associated with fibromyalgia, where patients were nearly 30 times more likely to have a fibromyalgia diagnosis than those with low back pain. Yet more than two thirds of patients flagged by the AI lacked a clinical fibromyalgia diagnosis; an objective “informatics proxy” applying the formal criteria found 66.3% of the widespread-heavy cluster met diagnostic criteria, while only 22.4% were diagnosed. The missed patients were more likely to be male and older, demonstrating diagnostic bias. Extrapolating from these findings, the script suggests the true U.S. population meeting criteria could be 21–42 million. It proposes integrating digital body maps and machine-learning alerts into clinic workflows to prompt unbiased evaluation, while emphasizing existing tools already work if applied. The script also frames fibromyalgia as nociplastic pain (central nervous system hypersensitivity), warning that proce
Support the show
When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...