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National Institute for Health and Care Research
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  • Engaging and involving disabled people
    This is the fourth episode of our series, Spotlight on community engagement and involvement (CEI): Leaving no one behind.Host Mark Lutton, NIHR Assistant Director for Global Health Programmes is joined by Sweta Pal, Director of CEI for NAMASTE at Sangath, Dr Natasha Fothergill-Misbah, Research Associate at Newcastle University, and Dr Andrew Sentoogo Ssemata, Post-doctoral Scientist at MRC/UVRI & LSHTM Uganda Research Unit. Together, they discuss engaging disabled people in health care research. The guests share what is meant by leaving no one behind, challenges of engaging gender groups in their research, the impact of their research on communities and the impact on their research, and provide tips for leaving no one behind in CEI.  Get to know our speakersSweta Pal is a public engagement professional. Her work has spanned youth mental health and early child development focusing on co-developing health promotion programmes which involve individuals with lived experience of a health concern into programme conception, design and implementation. Sweta employs participatory research methodologies to co-create health education programmes targeted at diverse audiences and communicate complex sociocultural subjects through accessible mediums and promote help-seeking. Through Sweta's work, she strives to create a world where all young people are able to thrive and enjoy good mental health without stigma and discrimination.Andrew Sentoogo Ssemata is a post-doctoral socio-behavioural scientist underthe Disability Research Group (DRG) at the MRC/ UVRI & LSHTM UgandaResearch Unit, Entebbe. Andrew is also a member of the InternationalCentre for Evidence in Disability (ICED) and a Research fellow in the Departmentof Global Health and Development at LSHTM.Andrew has led on several community engagement initiatives for trials in Malaria,HIV, menstrual health and disability. Currently, he is a co-researcher on theNIHR professorship grant to Prof Hannah Kuper that is conducting a cluster randomized trial on improving access to healthcare for disabled people utilizing participatory learning and action for disability (PLA-D) groups in Uganda (2022-2026).Dr Tash Fothergill-Misbah’s research has focused on Parkinson’s disease and ageing in Africa, stigma and access to healthcare. She is the CEI co-lead for the NIHR Global Health Research Group on Transforming Parkinson’s Care in Africa (TraPCAf), working across 7 countries. Tash has coordinated the grant’s CEI work alongside ‘Parkinson’s Africa’, the grant’s CEI partner. These activities have involved: proposal development workshops advocacy and awareness raising through community engagement and documentary filmsParkinson’s training workshopsthe establishment of support groups for Parkinson’spatient advisory workshops to inform the research processMark Lutton is Assistant Director of Global Health programmes at the NIHR Academy. He is responsible for the delivery of NIHR’s Global Health capacity strengthening programmes and personal awards. Prior to joining NIHR, Mark was CEO of an FCDO funded research consortium aiming to strengthen health system resilience in fragile and shock prone settings. He has a background in capacity strengthening, programme management and Monitoring, Evaluation and Learning. Mark holds a BSc in Zoology (University of Edinburgh) and an MSc in Public Health (LSHTM). Please note this episode was recorded in late 2024. The views and opinions expressed in this podcast are those of the host and guests and do not necessarily reflect those of the NIHR or the Department of Health and Social Care.
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  • Engaging and involving mobile, stateless and displaced communities
    Gary Hickey, NIHR Senior Research Manager for Patient and Public Involvement and Engagement hosts this episode and is joined by Dr Jayakayatri Jeevajothi Nathan, Research Manager at Universiti Malaya, Farzana Khan, Chief Executive Director of Fasiuddin Khan Research Foundation, and Jo Vearey, Associate Professor at the African Centre for Migration and Society, University of the Witwatersrand. Together, they discuss what is meant by leaving no one behind, the impact and challenges of engaging mobile, stateless and displaced communities in their research, and community engagement and involvement (CEI) tips.  Get to know our speakers Dr Jayakayatri Jeevajothi Nathan (Kay Nathan) and Farzana Khan are affiliated with NIHR Global Health Research Unit on Respiratory Health (RESPIRE-2). Kay Nathan collaborated with the RESPIRE team in Sabah, Malaysia, to develop a clinical algorithm for diagnosing smear-negative pulmonary tuberculosis in resource-limited settings. Her efforts focus on engaging stateless communities who face compounded challenges — legal barriers, societal stigma, and high illiteracy rates — that limit their access to healthcare. Through community outreach, Kay raises awareness, dispels misconceptions about tuberculosis, and reducing stigma, adapting health information into pictorial formats and videos in local dialects to bridge literacy gaps. Inspired by the principle of “leave no one behind,” her commitment is to create trust and ensure these marginalised communities have access to essential healthcare, overcoming barriers step by step.Dr. Farzana Khan, a Bangladeshi physician, scientist, and CEO of the Fasiuddin Khan Research Foundation (FKRF), holds a PhD in Global Health from the University of Edinburgh. With a professional background encompassing palliative care and public health, her research endeavors center on investigating the delivery and impact of quality palliative care in marginalized environments such as urban slums and humanitarian settings in low and middle income countries.Dr. Khan's contributions extend to her collaboration with the UN-IOM in Cox's Bazar, where she has been pivotal in establishing palliative care services in Rohingya refugee camps in Bangladesh.Jo Vearey is affiliated with Global Health Research Group on Disrupting the cycle of GEndered violence & Poor Mental health among Migrants in precarious Situations (GEMMS). Jo’s internationally recognised and globally-impactful research in the field of migration and health is informed by her commitment to social and epistemic justice. Fundamental to her research practice is investigating the ethical, empirical and methodological factors —  and their entanglements — that are associated with engaged research approaches. At international and local levels, Jo exlpores approaches that encourage genuine engagement with epistemic injustice in agenda-setting processes and in the development of evidence-informed migration and health governance framework, policies and programmes.Gary Hickey is a Senior Research Manager at the NIHR and Chair of the International Patient and Public Involvement Network. He is passionate about promoting and sharing knowledge from across the globe on how to involve the public and communities in research. Gary works with researchers and the public, providing advice, guidance and training on patient and public involvement in health and social care research. He also writes, presents and is involved in several podcasts on these issues.This episode was recorded in late 2024. The views and opinions expressed in this podcast are those of the host and guests and do not necessarily reflect those of the NIHR or the Department of Health and Social Care.
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  • Conversations to Cultivate Change - Episode 2
    Conversations to Cultivate Change: Leading with purpose - Professor Robina Coker on building a career, mentorship and researchIn this episode, host Dr Keerti Gedela is joined by Professor Robina Coker, professor of practice and consultant in respiratory medicine at Imperial College Healthcare NHS Trust. Robina was previously the clinical director of the NIHR Clinical Research Network North West London, before its transition as part of the NIHR Research Delivery Network.Drawing on over 35 years in clinical medicine, Professor Coker reflects on her early inspirations, the evolving realities of working in the NHS, and the enduring values of patient-centred care. She shares thought-provoking insights on medical education, compassionate leadership, and the importance of nurturing diverse perspectives within clinical and research teams.Robina also discusses her leadership journey and the lessons she has carried forward - shaped by personal mentors and a deep belief in the power of encouragement and inclusion.This inspiring conversation highlights the role of reflection, resilience, and representation in shaping a more equitable and innovative future in health and care research.Listen now to learn why leadership rooted in authenticity and support can transform teams and systems.Host Dr Keerti Gedela is a clinician based at Chelsea and Westminster Hospital NHS Foundation Trust, and leads research inclusion work for the NIHR North London Regional Research Delivery Network.
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  • Gender considerations for inclusive CEI
    This is the second episode of our series, Spotlight on community engagement and involvement (CEI): Leaving no one behind. Heidi Surridge, NIHR Senior Research Manager for CEI, hosts this episode and is joined by Prince Tommy Williams, Executive Director of Lifeline Nehemiah Projects, Mangenda Kamara, Co-founder of 2YoungLives, and Sanjog Thakuri, Consultant on Child Participation, Governance and Professional and Organisational Development. The guests discuss what is meant by leaving no one behind, challenges of engaging gender groups in their research, the impact of their research on communities and provide tips for leaving no one behind in CEI. Prince and Mangenda are affiliated with the NIHR Global Health Research Group: Implementation of simple solutions to reduce maternal and neonatal mortality and build research capacity in Sierra Leone.Get to know our speakersPrince Tommy Williams has over 20 years of experience in CEI. His impactful leadership during the 2014 to 2015 Ebola outbreak in Sierra Leone saw him coordinate a vital response for the Kuntorloh, Wellington community, saving 20,000 lives providing messaging and essential support to 18,000 individuals in quarantine homes. Under his guidance, projects funded by Big Lottery, Comic Relief, Lifeline Network International and NIHR have successfully reached marginalised groups in deprived communities. Prince's unwavering commitment to improving lives, leaving no one behind, continues to inspire and empower those in need.Mangenda Kamara is a research assistant for 2yL, a community engagement expert, a gender expert and a PhD student in the Department of Sociology and Social Work. With extensive experience in community engagement, Mangenda  specializes in guiding, coaching and mentoring people in the community, especially women, to drive positive change. Her work fosters inclusive educational environments and empowering local communities. In Mangenda's PhD research, she explored adolescent pregnancy in Sierra Leone through a womanist lens, focusing on the Tombo and Mattru Jong communities. This research strengthens her commitment to advocating for gender equity, youth empowerment and educational access. Her engagement spans policy advisory roles, grassroots initiatives and partnerships that create sustainable community-driven solutions. Sanjog Thakuri is an intersectional feminist with a special focus on Boyhood, Masculinity, and MenEngage. He has worked with and for the community for over 2 decades by engaging the community for the advocacy and transformation of harmful social norms. Sanjog's policy support for government and advocacy programming for and with development partners and UN agencies is mostly focused on empowering the community and listening to them. Heidi Surridge is a Senior Research Manager at the NIHR - Global Health Research, CEI and Research Inclusion. She has a nursing background, before gaining a BA (Hons) in Social Sciences and a Masters in Sociological Research in Health Care, then working as a health researcher in the UK. Heidi has worked for the NIHR for 16 years, facilitating, supporting and advocating public and community involvement in research and the management of research funding. She is dedicated to enabling communities to have ethical, relevant and mutually beneficial involvement in health research worldwide, from research priority setting through to policy and service provider uptake. This episode was recorded in late 2024. The views and opinions expressed in this podcast are those of the host and guests and do not necessarily reflect those of the NIHR or the Department of Health and Social Care.
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  • Leaving no one behind in CEI: What do we mean?
    This is the first episode of our podcast series, Spotlight on community engagement and involvement (CEI): Leaving no one behind. Episode 1 introduces the Leave No One Behind agenda and discusses its importance in the context of CEI. Gary Hickey, NIHR Senior Research Manager for Patient and Public Involvement and Engagement hosts this podcast and is joined by Professor Kara Hanson, Director of Global Health Research Programmes at NIHR and Noni Mumba, Head of Community Engagement at KEMRI Wellcome Trust Research Programme. The guests discuss the importance of CEI in NIHR-funded research and what is meant by leaving no one behind, challenges and examples from their work, and provide tips for leaving no one behind in CEI. Get to know our speakersGary Hickey is a Senior Research Manager at the NIHR and also Chair of the International Patient and Public Involvement Network. He is passionate about promoting and sharing knowledge from across the globe about how to involve the public and communities in research. Gary works with researchers and the public providing advice, guidance and training on patient and public involvement in health and social care research. In addition, he writes, presents and is involved in several podcasts on these issues.Kara Hanson is Professor of Health System Economics and Dean, Faculty of Public Health and Policy at the London School of Hygiene and Tropical Medicine. She holds degrees in Economics and Political Science (McGill University, Canada); Economics and politics of development (University of Cambridge); and International Health Economics (Harvard University). Her research contributions are in the areas of health financing and the private health sector. She is Director of the UK NIHR Global Health Research Programme.Noni Mumba is an engagement practitioner with over 10 years expertise in community engagement for global health research. This expertise also includes engaging broadly with specific publics of interest, including local and national policy makers in Kenya. Her role at KEMRI Wellcome Trust Research Programme (KWTRP) includes development of engagement strategies and innovative approaches for the engagement and involvement of host communities, stakeholders, and policy makers in research planning, conduct, and uptake of findings into policy. She also supports monitoring, evaluation and learning of engagement activities.Noni is involved in building the capacity of KWTRP engagement staff and researchers on engagement. In the last 5 years, this capacity strengthening has extended beyond KWTRP through webinars, teaching engagements, and collaborative research projects.
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