Bendy Bodies with Dr. Linda Bluestein

What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years. Together, they dive into the frustrating diagnostic delays, the overlap between vascular compression and syndromes like POTS (Postural Orthostatic Tachycardia Syndrome) and EDS  (Ehlers-Danlos Syndrome), and how new surgical approaches are offering hope. Whether you're navigating chronic pelvic pain, unexplained GI symptoms, or fainting episodes, this conversation breaks down the misunderstood links between your veins, nerves, and connective tissue—and what to do about them. Takeaways: MALS isn’t rare, it’s rarely diagnosed. Dr. Hacker explains the symptoms and scans to look for when your gut symptoms don’t match the tests. Why so many women are misdiagnosed with IBS or anxiety. Pelvic venous congestion, Nutcracker Syndrome, and May-Thurner often mimic more common conditions—but require totally different treatments. The surprising connection between vascular compression and POTS. It’s not just nerves, your veins might be compressing in ways that worsen dysautonomia. Surgery isn’t a silver bullet, but it can be life-changing. Dr. Hacker shares what makes a good surgical candidate and how his team helps patients navigate workup and recovery. When your connective tissue works against your vascular system. Hypermobility and EDS can make vascular compression more likely and more complicated to treat. Find the episode transcript here. Want more Dr. Robert Hacker? Instagram: https://www.instagram.com/stlvascular/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall short for people with hypermobile Ehlers-Danlos Syndrome (hEDS) and what you must consider before your next procedure, including essential imaging, anesthesia concerns, pelvic floor support, and mesh alternatives. Then, she explores a lesser-known but increasingly discussed connection: how vision dyspraxia and dyscalculia often go hand-in-hand with hypermobility, and why challenges with balance, motor planning, and even math might be far more physical than we think. Plus, you'll hear my own hypermobility hack for surviving the dreaded shampoo bowl at the salon. Whether you're navigating chronic pain, misunderstood learning challenges, or a body that just won’t follow the rules, this episode is packed with the nuanced insight you’ve been waiting for. Takeaways: Why rectal prolapse surgeries often fail in HEDS and the exact workup to request before considering another one. The real risks of mesh, sutures, and tension-based surgical repair in connective tissue disorders. How vision dyspraxia and convergence insufficiency can disrupt learning and quality of life and why they’re so common in EDS. Dyscalculia explained: not just a math issue, but a brain-body mismatch often missed in neurodiverse bendy bodies. Two hypermobility hacks worth stealing including a genius way to get your hair washed without neck pain. Find the episode transcript here: https://www.bendybodiespodcast.com/rectal-prolapse-dyscalculia-dyspraxia-the-connective-tissue-connection-office-hours-ep-177/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything? Together, they unpack the systemic obstacles still tripping up patients, from years-long diagnostic delays and rampant misinformation to critical gaps in research, policy, and clinical education. Lara shares the driving force behind her vision for global change and the monumental international effort unfolding to move EDS and HSD into the spotlight they’ve long deserved. If you’ve ever wondered why the system feels stuck, or what it might take to finally break through, this conversation offers rare insight and genuine hope. Takeaways: Lara reveals why global alignment across policy, education, and clinical care could be the missing key to major breakthroughs for EDS and HSD. The episode exposes the hidden consequences of misdiagnosis and why early recognition, especially in children, may be more urgent than most clinicians realize. Linda and Lara dig into how outdated terminology and dismissive provider attitudes continue to shape patient experiences in ways few talk about openly. Lara shares how her personal journey fuels her global leadership and why patient voices are becoming impossible to ignore in research, advocacy, and policy. The international symposium and roadmap point toward real momentum, but lasting change will require unprecedented collaboration across borders and specialties. Find Episode Transcript here: https://www.bendybodiespodcast.com/the-roadmap-that-could-change-eds-forever-with-lara-bloom-ep-176/ Want more Lara Bloom? Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Linda's favorite powdered Vitamin C Product: https://www.amazon.com/shop/hypermobilitymd/list/3PBOYTJKW5YIX?ref_=aipsflist Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after embolization procedures, they unpack the physiology and the myths. Plus, they dive into GLP-1 medications like semaglutide and tirzepatide, long COVID symptom overlaps, heat intolerance, and why certain movement strategies backfire for patients with hypermobility, POTS, and other connective tissue conditions. They also trade tips on hydration, travel, pelvic support, and how to build movement back into your life, even when your nervous system fights you at every step. Takeaways: Dr. Cutchins explains how PVD impacts the whole body, causing fatigue, pelvic pain, and even mimicking other disorders. Weight loss drugs like semaglutide and tirzepatide can help, but only in the context of a larger strategy that considers joint instability, hormonal shifts, and gut function. They discuss how patients with PVD or dysautonomia are especially sensitive to warm environments and what that teaches us about blood flow and pressure regulation. From favorite exercises to subtle red flags, they explore how to reintroduce movement without triggering crashes or setbacks. Compression, salt loading, movement timing, and cooling tools can turn a nightmare trip into a manageable one. Want more Dr. Alexis Cutchins? Find the episode transcript here. https://www.instagram.com/drcutchins/ https://youtube.com/@DrCutchins?si=pNvR2A6eFOL4vS9m Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health shifts, we’re laying it all out. We explore rapid labor, prolapse risk, anesthetic resistance, dysautonomia flares, pelvic floor fragility, and why some babies bruise easier than doctors expect. Whether you're prepping for pregnancy, navigating birth, or recovering afterward, this is your roadmap for a more informed journey. Takeaways: Pregnancy with EDS or HSD isn't automatically high-risk, but it comes with specific concerns like tissue fragility, anesthesia resistance, and prolapse that OBs may overlook. Labor can be rapid and unpredictable in people with connective tissue disorders, making delivery planning (and backup plans) especially important. Local anesthetics may not work as expected, so communicating prior resistance to meds like lidocaine is crucial for anesthesia teams. Postpartum recovery often takes longer, with higher risk of complications like joint instability, slow healing, and mental health shifts, including postpartum depression. Medical students with EDS should choose specialties with pacing and physical demand in mind, considering how residency schedules and procedures might affect long-term career sustainability. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices