This EndoLife

This week we’re travelling again, heading over to the Isle of Wight, and we have a lot of packing to do, so this week is a real bite sized episode, but an important one.
You may remember me talking about a study showing 80% of participants with endometriosis also had SIBO. But what many people don’t know, and what I think doesn’t get enough focus, is that this study also found 100% of participants had a dysfunction of their small intestine motility.

References
1) https://pubmed.ncbi.nlm.nih.gov/9660426/
2)  https://www.sciencedirect.com/topics/medicine-and-dentistry/migrating-motor-complex
3) Diagnosis and management of small intestinal bacterial overgrowth - PubMed, Lower frequency of MMC is found in IBS subjects with abnormal lactulose breath test, suggesting bacterial overgrowth - PubMed, The interdigestive motor complex of normal subjects and patients with bacterial overgrowth of the small intestine - PubMed, The migrating motor complex: control mechanisms and its role in health and disease - PubMed,Gastrointestinal motility disorders and bacterial overgrowth - PubMed, Modern concepts of small intestinal bacterial overgrowth - PMC
4) Lower frequency of MMC is found in IBS subjects with abnormal lactulose breath test, suggesting bacterial overgrowth - PubMed, Development and Validation of a Biomarker for Diarrhea-Predominant Irritable Bowel Syndrome in Human Subjects | PLOS One, Autoimmunity Links Vinculin to the Pathophysiology of Chronic Functional Bowel Changes Following Campylobacter jejuni Infection in a Rat Model - PubMed
5)  https://pubmed.ncbi.nlm.nih.gov/39990556/
6) https://www.sciencedirect.com/science/article/pii/S001502829800096X#BIB27, Role of Insulin Signaling in Prostaglandins SynthesisUniversity of Toledohttps://openjournals.utoledo.edu › download

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

Recently, there’s been some awful articles going around about the rise of the chronic illness community and how we’re lying about how ill we are, and that we’re encouraging others to believe they are also ill.
So, today, if you’re questioning how you’re feeling, worried it’s all in your head, or fearful you won’t be believed, I wanted to give you some research on why you your health may have been declining in recent years, or why you now have three or four extra chronic conditions added on top of your endo. It’s not all in your head, and you’re not making it up.

References
1) https://pmc.ncbi.nlm.nih.gov/articles/PMC12079877/
2) https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2829454, https://jamanetwork.com/journals/jama/article-abstract/2828511
3) Long-COVID Postural Tachycardia Syndrome: A deep phenotyping study | medRxiv, Prevalence and Clinical Impact of Postural Orthostatic Tachycardia Syndrome in Highly Symptomatic Long COVID | Circulation: Arrhythmia and Electrophysiology, https://www.contagionlive.com/view/majority-of-patients-with-long-covid-meet-criteria-for-pots, https://www.jacc.org/doi/10.1016/j.jacadv.2025.101873
4) https://pmc.ncbi.nlm.nih.gov/articles/PMC3413773/
5) https://www.potsuk.org/pots-and-long-covid/
6) https://pubmed.ncbi.nlm.nih.gov/24098785/
7) https://pmc.ncbi.nlm.nih.gov/articles/PMC8459548/, https://www.sciencedirect.com/science/article/pii/S1201971220307323
8) https://pmc.ncbi.nlm.nih.gov/articles/PMC8459548/
9) https://pubmed.ncbi.nlm.nih.gov/35449490/
10) https://www.nature.com/articles/s41586-026-10740-z
11) https://jamanetwork.com/journals/jama/fullarticle/2800964, https://www.cedars-sinai.org/newsroom/new-study-is-there-a-link-between-covid-19-vaccination-and-pots/
12) https://pmc.ncbi.nlm.nih.gov/articles/PMC8804463/

Podcast episodes
https://www.theendobellycoach.com/podcast/endometriosis-and-ehlers-danlos-syndrome
https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis
https://www.theendobellycoach.com/podcast/low-fodmap-diet-endometriosis-pots-eds
https://www.theendobellycoach.com/podcast/endo-symptoms-and-hypermobility
https://www.theendobellycoach.com/podcast/impact-of-pots-on-endo-belly-ibs
https://www.theendobellycoach.com/podcast/mcas-and-endo-belly
https://www.theendobellycoach.com/podcast/what-is-pots-dysautonomia
https://www.theendobellycoach.com/podcast/what-does-mcas-have-to-do-with-endo

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

Today I want to talk about Ehlers-Danlos syndrome and the hypermobility spectrum disorders, and how they may be contributing to your endo belly, IBS and/or SIBO

References
1) https://www.ehlers-danlos.com/what-is-eds/
2) https://www.ehlers-danlos.com/what-is-hsd/
3) 
https://pubmed.ncbi.nlm.nih.gov/28145606/
4) https://pubmed.ncbi.nlm.nih.gov/39990556/
5) https://jchr.org/index.php/JCHR/article/view/5363
6) https://sibosos.com/joint-hypermobility-syndromes-an-important-underlying-cause-of-recurrent-sibo-with-dr-alena-guggenheim/
7) Higher prevalence of joint hypermobility in constipation predominant irritable bowel syndrome - PubMed
8) S0476 High Prevalence of Methane Predominant Small Bowel Bacterial Overgrowth and Constipation in Patients With Hypermobile Ehlers-Danlos Syndrome
9) Severe Gastrointestinal Dysmotility in Patients With Ehlers-Danlos Syndrome: Case Series - 1 Center Experience
10) S3153 Hypermobile Ehlers-Danlos Syndrome and Visceroptosis, Visceroptosis and the Ehlers-Danlos Syndrome - PMC
11) ​​https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.64182, https://www.dovepress.com/the-investigation-and-management-of-the-abdominopelvic-vascular-compre-peer-reviewed-fulltext-article-VHRM
12) Pelvic Congestion Syndrome: The Gynecological Perspective - PMC, https://pubmed.ncbi.nlm.nih.gov/27177709/
13) https://pmc.ncbi.nlm.nih.gov/articles/PMC9810002/
14)https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis, https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1379646/full#ref30

Podcast episodes
https://www.theendobellycoach.com/podcast/endometriosis-and-ehlers-danlos-syndrome
https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis
https://www.theendobellycoach.com/podcast/endo-eds-adhd
https://www.theendobellycoach.com/podcast/low-fodmap-diet-endometriosis-pots-eds
https://www.theendobellycoach.com/podcast/sibo-relapse-endometriosis
https://www.theendobellycoach.com/podcast/endo-adhd-link
https://www.theendobellycoach.com/podcast/pelvic-congestion-syndrome-endometriosis-dr-alexis-cutchins

Clinics
The London Hypermobility Unit (UK)
Dr Ahmed (UK)
Dr Alexis Cutchins(USA)
ChroniusCare (USA)
The EDS Clinic (USA)

Compression Syndromes
Interview with Dr Alexis Cutchins
SMA syndrome
MALS
May-Thurner syndrome
Nutcracker syndrome

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off this July.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

Please note - due to graphs and example images, this podcast might be best consumed as the original video here: https://youtu.be/z04DCzoSgxY
This week on the podcast I am interview Rose Mackenzie, Clinical Manager behind Mira, the hormone monitor that I use with clients, to discuss tracking and understanding your hormonal patterns.
I use Mira with my clients to:
Identify what their hormones are up to when their endo symptoms are at their worst.

Identify whether my clients are in perimenopause or menopause and what stage.

Track and manage PMOS.

Help clients with their fertility journey.

And even identify if hormone fluctuations make their co-conditions (like MCAS and POTS) worse.

In this episode, Rose and I will be covering:
What is the Mira, how does it work, what is the validity of the testing and how does it compare to the hormone tests we can get at the doctor's surgery? How can we use it?

How might the Mira be helpful for tracking endo symptoms and what might be influencing them?

How can we use Mira to monitor perimenopause and/or menopause? What patterns are we looking for?

How can we use Mira for monitoring PMOS (a co-condition of endo)?

How can we use Mira for fertility?

Are there any co-conditions of endo that we could monitor with Mira?

You don’t have to have a Mira or want to buy one to benefit from this conversation. We’re going to be talking about hormones in endo, peri, PMOS and more, and discussing what patterns, signs and symptoms to look for when identifying hormone issues.
However, if you do want to purchase one after listing to this episode, use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One to one coaching info and application⁠‍ ‍- £500 off this July.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

A while back I did an episode on Postural Orthostatic Tachycardia Syndrome and Dysautonomia and its connection to endometriosis.
If you haven’t listened to that episode, I’ve linked it in the show notes.
Today I want to do a short episode on how POTS may be connected to your endo belly and IBS symptoms.

References
1) Gastrointestinal (GI) Disease Burden in Patients with Postural Orthostatic Tachycardia Syndrome (POTS) and Abnormalities Found on High-Resolution Motility Testing: 566, Managing gastrointestinal manifestations in patients with PoTS: a UK DGH experience - The British Journal of Cardiology, Gastrointestinal Symptoms in Postural Tachycardia Syndrome: a Systematic Review - PMC
2) https://pmc.ncbi.nlm.nih.gov/articles/PMC7282488/
3) Severe Gastrointestinal Dysmotility in Patients With Ehlers-Danlos Syndrome: Case Series - 1 Center Experience, Prevalence and Predictors of Gastrointestinal Dysmotility in Patients with Hypermobile Ehlers-Danlos Syndrome: A Tertiary Care Center Experience - PMC, Gastrointestinal problems in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders, An overview of Ehlers Danlos syndrome and the link between postural orthostatic tachycardia syndrome and gastrointestinal symptoms with a focus on gastroparesis
4) https://pmc.ncbi.nlm.nih.gov/articles/PMC7255528/ , https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1379646/, https://pubmed.ncbi.nlm.nih.gov/26376608/, https://assets.cureus.com/uploads/original_article/pdf/30528/1612430138-1612430130-20210204-18203-dyitxb.pdf
5) https://www.ncbi.nlm.nih.gov/books/NBK470542/ , https://www.mayoclinic.org/diseases-conditions/dumping-syndrome/symptoms-causes/syc-20371915 , https://gutscharity.org.uk/advice-and-information/conditions/dumping-syndrome/
6) https://journals.lww.com/ajg/fulltext/2016/10001/gastrointestinal__gi__disease_burden_in_patients.566.aspx
7) https://www.autonomicneuroscience.com/article/S1566-0702(18)30015-8/fulltext

Podcasts
Delayed gastric emptying
Low FODMAP diet and endometriosis
Low FODMAP diet and POTS
POTS 101

Clinics
Dr Gall(UK)
Dr Alexis Cutchins(USA)
ChroniusCare (USA)
The EDS Clinic (USA)

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One to one coaching info and application⁠‍ ‍- £500 off this July.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠