This EndoLife

A week or two back I did an episode on the small intestine spasm seen in 100% of endo participants in a study on endometriosis and SIBO.(1)
Last week I shared about this observation on Instagram and the post went wild. It had 100,000 views, hundreds of comments, thousands of saves and so many of you wrote to me to say that you get a spasm like pain in your intestines over night.
I am going to do some more digging, as I’ve never come across more research looking into this issue since that study, which was in 1998. I could have certainly missed it, so I’ll look again, but in the meantime, it’s clear something is going on and many of you are suffering.
Now, I am going to do another episode on other intestinal spasms that could also be happening in the night, because I think some of us are having different experiences, but today I want to do a short episode on the main motility tests we can get for the small intestines that I advise my clients to discuss with their GI doctor.

References
1) https://pubmed.ncbi.nlm.nih.gov/9660426/
2) https://stanfordhealthcare.org/medical-treatments/e/endoscopy/types/small-bowel-manometry.html
3) https://www.sciencedirect.com/topics/medicine-and-dentistry/migrating-motor-complex
4) Diagnosis and management of small intestinal bacterial overgrowth - PubMed, Lower frequency of MMC is found in IBS subjects with abnormal lactulose breath test, suggesting bacterial overgrowth - PubMed, The interdigestive motor complex of normal subjects and patients with bacterial overgrowth of the small intestine - PubMed, The migrating motor complex: control mechanisms and its role in health and disease - PubMed,Gastrointestinal motility disorders and bacterial overgrowth - PubMed, Modern concepts of small intestinal bacterial overgrowth - PMC
5) https://pubmed.ncbi.nlm.nih.gov/24881810/
6) https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis
7) https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/barium-swallow
8) https://www.whittington.nhs.uk/default.asp?c=42427

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One to one coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

When I am working with endo clients on their SIBO, I always start the discussions not by diving into the protocol options, but by setting expectations and giving some cautionary warnings.
This is so important, because SIBO is not easy to treat, but also, if you misunderstand your test results as you go through the protocol, you may give up or change protocols when in fact, you should keep going.
Often I have people come to me and tell me they tried one round of herbs and their levels went up, or they tried antibiotics and only one gas came down whilst the other went up, and so on.
So, today, I want to give you a very brief insight into some of the gas patterns you can expect to see when you’re going through SIBO treatment, so that if you’re doing this on your own, or you’re doing it with the help of your doctor but perhaps they are not as versed in SIBO as you’d like, you know what to do when you see these patterns.

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

This week we’re travelling again, heading over to the Isle of Wight, and we have a lot of packing to do, so this week is a real bite sized episode, but an important one.
You may remember me talking about a study showing 80% of participants with endometriosis also had SIBO. But what many people don’t know, and what I think doesn’t get enough focus, is that this study also found 100% of participants had a dysfunction of their small intestine motility.

References
1) https://pubmed.ncbi.nlm.nih.gov/9660426/
2)  https://www.sciencedirect.com/topics/medicine-and-dentistry/migrating-motor-complex
3) Diagnosis and management of small intestinal bacterial overgrowth - PubMed, Lower frequency of MMC is found in IBS subjects with abnormal lactulose breath test, suggesting bacterial overgrowth - PubMed, The interdigestive motor complex of normal subjects and patients with bacterial overgrowth of the small intestine - PubMed, The migrating motor complex: control mechanisms and its role in health and disease - PubMed,Gastrointestinal motility disorders and bacterial overgrowth - PubMed, Modern concepts of small intestinal bacterial overgrowth - PMC
4) Lower frequency of MMC is found in IBS subjects with abnormal lactulose breath test, suggesting bacterial overgrowth - PubMed, Development and Validation of a Biomarker for Diarrhea-Predominant Irritable Bowel Syndrome in Human Subjects | PLOS One, Autoimmunity Links Vinculin to the Pathophysiology of Chronic Functional Bowel Changes Following Campylobacter jejuni Infection in a Rat Model - PubMed
5)  https://pubmed.ncbi.nlm.nih.gov/39990556/
6) https://www.sciencedirect.com/science/article/pii/S001502829800096X#BIB27, Role of Insulin Signaling in Prostaglandins SynthesisUniversity of Toledohttps://openjournals.utoledo.edu › download

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

Recently, there’s been some awful articles going around about the rise of the chronic illness community and how we’re lying about how ill we are, and that we’re encouraging others to believe they are also ill.
So, today, if you’re questioning how you’re feeling, worried it’s all in your head, or fearful you won’t be believed, I wanted to give you some research on why you your health may have been declining in recent years, or why you now have three or four extra chronic conditions added on top of your endo. It’s not all in your head, and you’re not making it up.

References
1) https://pmc.ncbi.nlm.nih.gov/articles/PMC12079877/
2) https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2829454, https://jamanetwork.com/journals/jama/article-abstract/2828511
3) Long-COVID Postural Tachycardia Syndrome: A deep phenotyping study | medRxiv, Prevalence and Clinical Impact of Postural Orthostatic Tachycardia Syndrome in Highly Symptomatic Long COVID | Circulation: Arrhythmia and Electrophysiology, https://www.contagionlive.com/view/majority-of-patients-with-long-covid-meet-criteria-for-pots, https://www.jacc.org/doi/10.1016/j.jacadv.2025.101873
4) https://pmc.ncbi.nlm.nih.gov/articles/PMC3413773/
5) https://www.potsuk.org/pots-and-long-covid/
6) https://pubmed.ncbi.nlm.nih.gov/24098785/
7) https://pmc.ncbi.nlm.nih.gov/articles/PMC8459548/, https://www.sciencedirect.com/science/article/pii/S1201971220307323
8) https://pmc.ncbi.nlm.nih.gov/articles/PMC8459548/
9) https://pubmed.ncbi.nlm.nih.gov/35449490/
10) https://www.nature.com/articles/s41586-026-10740-z
11) https://jamanetwork.com/journals/jama/fullarticle/2800964, https://www.cedars-sinai.org/newsroom/new-study-is-there-a-link-between-covid-19-vaccination-and-pots/
12) https://pmc.ncbi.nlm.nih.gov/articles/PMC8804463/

Podcast episodes
https://www.theendobellycoach.com/podcast/endometriosis-and-ehlers-danlos-syndrome
https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis
https://www.theendobellycoach.com/podcast/low-fodmap-diet-endometriosis-pots-eds
https://www.theendobellycoach.com/podcast/endo-symptoms-and-hypermobility
https://www.theendobellycoach.com/podcast/impact-of-pots-on-endo-belly-ibs
https://www.theendobellycoach.com/podcast/mcas-and-endo-belly
https://www.theendobellycoach.com/podcast/what-is-pots-dysautonomia
https://www.theendobellycoach.com/podcast/what-does-mcas-have-to-do-with-endo

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off end of summer offer.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠

Today I want to talk about Ehlers-Danlos syndrome and the hypermobility spectrum disorders, and how they may be contributing to your endo belly, IBS and/or SIBO

References
1) https://www.ehlers-danlos.com/what-is-eds/
2) https://www.ehlers-danlos.com/what-is-hsd/
3) 
https://pubmed.ncbi.nlm.nih.gov/28145606/
4) https://pubmed.ncbi.nlm.nih.gov/39990556/
5) https://jchr.org/index.php/JCHR/article/view/5363
6) https://sibosos.com/joint-hypermobility-syndromes-an-important-underlying-cause-of-recurrent-sibo-with-dr-alena-guggenheim/
7) Higher prevalence of joint hypermobility in constipation predominant irritable bowel syndrome - PubMed
8) S0476 High Prevalence of Methane Predominant Small Bowel Bacterial Overgrowth and Constipation in Patients With Hypermobile Ehlers-Danlos Syndrome
9) Severe Gastrointestinal Dysmotility in Patients With Ehlers-Danlos Syndrome: Case Series - 1 Center Experience
10) S3153 Hypermobile Ehlers-Danlos Syndrome and Visceroptosis, Visceroptosis and the Ehlers-Danlos Syndrome - PMC
11) ​​https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.64182, https://www.dovepress.com/the-investigation-and-management-of-the-abdominopelvic-vascular-compre-peer-reviewed-fulltext-article-VHRM
12) Pelvic Congestion Syndrome: The Gynecological Perspective - PMC, https://pubmed.ncbi.nlm.nih.gov/27177709/
13) https://pmc.ncbi.nlm.nih.gov/articles/PMC9810002/
14)https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis, https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1379646/full#ref30

Podcast episodes
https://www.theendobellycoach.com/podcast/endometriosis-and-ehlers-danlos-syndrome
https://www.theendobellycoach.com/podcast/delayed-gastric-emptying-endo-sibo-gastroparesis
https://www.theendobellycoach.com/podcast/endo-eds-adhd
https://www.theendobellycoach.com/podcast/low-fodmap-diet-endometriosis-pots-eds
https://www.theendobellycoach.com/podcast/sibo-relapse-endometriosis
https://www.theendobellycoach.com/podcast/endo-adhd-link
https://www.theendobellycoach.com/podcast/pelvic-congestion-syndrome-endometriosis-dr-alexis-cutchins

Clinics
The London Hypermobility Unit (UK)
Dr Ahmed (UK)
Dr Alexis Cutchins(USA)
ChroniusCare (USA)
The EDS Clinic (USA)

Compression Syndromes
Interview with Dr Alexis Cutchins
SMA syndrome
MALS
May-Thurner syndrome
Nutcracker syndrome

Need more help or want to learn how to work with me?
Ways to work with me:
⁠One toone coaching info and application⁠‍ ‍- £500 off this July.
Endo Sessions: Single and mini-package one to one endo coaching
SIBO Sessions: Single and mini-package one to one SIBO coaching
Live and Thrive with Endo 2.0 DIY online course
⁠Masterclasses in endo nutrition, surgery prep and recovery and pain relief⁠
⁠This EndoLife, It Starts with Breakfast digital cookbook⁠

Affiliate Partnerships
mBIOTA -mBIOTA Elemental is the next generation of the elemental diet and is developed with leading gastroenterologists and food scientists. It’s both clinically effective and easy to drink. And for eligible United States customers, mBIOTA Elemental can be purchased with Health Savings Accounts (HSA) and Flexible Spending Accounts (FSA) funds. You can learn more about the formula at mbiota.com and get 20% off with code ENDOLIFE (all caps). Code is valid for the two-week protocol and until June 14th.
Mira - Mira is an at-home hormone testing device for every day use. Use this link and code 2DUFFJESS20 to get 20% off the device and any future wand orders.
Tempdrop- Track fertility effortlessly with Tempdrop’s Wearable Sensor. Get 15% off with code: ENDOLIFE

Free resources:
This podcast! 
⁠Endometriosis Net Column⁠
⁠Endometriosis News Column⁠
⁠Substack ⁠
⁠Instagram⁠