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PSPA Podcast

PSPA
PSPA Podcast
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  • Understanding support and care
    In episode 2 of series 3 of the PSPA Podcast, we speak to Dr Bicky Marshall, Consultant Neurologist at Queen Elizabeth University Hospital in Glasgow. Dr Marshall helps to answer questions from the PSP & CBD community related to accessing support and care for a loved one living with the conditions, ensuring they remain at the centre of discussions and enough time is allocated to discuss everything you might want to know.
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    34:00
  • Dealing with diagnosis
    In the first episode of series three of the PSPA Podcast, we speak to Anna from Rare Minds. Anna helps us to unpick the complexities of coming to terms with a diagnosis of PSP or CBD, for both the person diagnosed, and their carer. As well as looking at the different emotions you may experience, Anna also provides some insight and tips to help you understand and process your feelings.
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    29:45
  • Living with PSP
    Paul Johnson shares an insight into his first PSP symptoms, his diagnosis and how his interests have changed since his diagnosis.
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    18:15
  • Episode 6: Research update with Dr Ed Jabbari
    In this episode, PSPA Research Coordinator, Megan Hodgson talks to Dr Ed Jabbari. Dr Jabbari has been working in the field of PSP & CBD research since 2016, when he became the Sara Koe Research Follow. Ed talks about his different research projects, study outcomes and hopes for the future.
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    21:15
  • Episode 5: PSP & CBD Awareness Week with Rebecca Packwood and Mark Jackson
    In this episode, CEO Rebecca Packwood talks to PSPA's new Director of Policy and Influencing, Mark Jackson. Mark shares what his role is and the launch of the #WeCare campaign and how people can help amplify our voice in PSP & CBD Awareness week, and beyond.
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    21:06

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About PSPA Podcast

The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pavers Foundation in memory of Mary Youll.
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