Let's Talk MS

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). Today's conversation is a hot topic for young people living with MS and related conditions. According to the 2020 MS Barometer, only 48% of the estimated number of people living with MS were in employment across the 32 responding countries. This figure highlights the significant employment-related challenges faced by people with MS. NMOSD and MOGAD are also relevant to the topic of employment. For this reason, we are excited to share more useful information with you on this topic, including good practices, how to deal with disclosure and other interesting questions and topics. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: • Graham Halsey, founder of Well Working Matters in the UK, a consultancy company in the area of absence management and return to work. • Jade Bourion, a Young People's Network member, a consultant by profession, and a sports enthusiast. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community! This episode if co-funded by Sanofi, Merck, Roche, Novartis, Alexion and Amgen. Chapters (00:00:00) - Let's Talk MS(00:01:20) - What It's Really Like to Work with MS, NMOSD(00:02:06) - Working with a disability(00:05:25) - Are we leading the way in disability inclusion?(00:07:49) - Disclosure of disabilities in the hiring process(00:15:53) - The role of chronic conditions in the workplace(00:19:45) - Working From Home(00:22:36) - Disclosing a disability on the job application(00:26:45) - The social rights of people with chronic conditions(00:28:34) - Sparkling Water or Still Water(00:29:22) - What Makes a Workplace Inclusive?(00:30:45) - Let's Talk Ms. in the Workplace

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). The MS Awareness Run is taking place the 2nd November in the framework of the 20th Edition of Brussels Airport Marathon and Half Marathon, a great opportunity to come together, raise awareness, run and celebrate the strength and resilience of the MS community.  That’s why we’re excited to discuss about sports and their impact on Multiple Sclerosis and related conditions. Today, we’ll explore how physical activity can support you throughout your diagnosis journey, its key benefits, and share some practical tips and insights along the way. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  Felipe Balisteiri, 32, from Brazil, was diagnosed with multiple sclerosis 10 years ago while studying physical education. The diagnosis inspired him to research the disease, leading him to complete a master’s in movement science. Since 2021, he has been pursuing a PhD in rehabilitation science at the University of Hasselt, Belgium, focusing on how people with multiple sclerosis control their movements and walking through brain activity analysis. Eline-Sofie, 24, from Norway, is a qualified nurse and a digital marketing student. She was diagnosed with MS at the age of 23, last year. Since then she has been a vocal advocate for raising awareness about MS and the needs of young people with the condition as an active member of YPN. She documents her journey as a person with MS on TikTok. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community! ---------------------------- You can find all the resources and documents mentioned in this episode below: Webinar about Movement with MS Information MS Awareness Run. Thanks for supporting our fundrasing efforts!  This episode if co-funded by Sanofi, Merck, Roche, Novartis, Alexion and Amgen.

Welcome back to the new season of Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). We’re excited to be back and to open this season with a special episode focusing on children with MS and their families as they go back to school. In this episode, we explore the unique challenges that paediatric MS brings, from school life and friendships to health and family relationships. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  Emily Blosberg is the founder of Mr Oscar Monkey, an NGO that helps children living with MS. After being diagnosed with MS herself at the age of 15, Emily discovered her passion for helping children, teenagers and young adults with MS to connect with each other. Eleanor Kitson, a graphic designer from the UK, was also diagnosed with MS at 15. She is a member of the EMSP Young People's Network. Her MS journey has taught her resilience and creativity, and has shown her the importance of finding her voice and showing that life with MS can still be full of colour, purpose and possibility.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community! This episode if co-funded by Sanofi, Merck, Roche, Novartis, Alexion and Amgen.

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We’ll hear a real-life story, learn more about the symptoms, and reflect on the power of positivity and mindset when navigating health challenges. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  Aida Fuentes is back in our podcast, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community! This episode if co-funded by Sanofi, Merck, Roche, Novartis, Alexion and Amgen.

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these conditions are and the vital role that community plays in the journey. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  Souad Mazari, patient advocate and founder of NGO Rare Mais Ensemble in France. Aida Fuentes, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community! This episode if co-funded by Sanofi, Merck, Roche, Novartis, Alexion and Amgen.