S02E01 | Paediatric MS: Growing, learning and adapting
Welcome back to the new season of Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP).
We’re excited to be back and to open this season with a special episode focusing on children with MS and their families as they go back to school. In this episode, we explore the unique challenges that paediatric MS brings, from school life and friendships to health and family relationships.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:
Emily Blosberg is the founder of Mr Oscar Monkey, an NGO that helps children living with MS. After being diagnosed with MS herself at the age of 15, Emily discovered her passion for helping children, teenagers and young adults with MS to connect with each other.
Eleanor Kitson, a graphic designer from the UK, was also diagnosed with MS at 15. She is a member of the EMSP Young People's Network. Her MS journey has taught her resilience and creativity, and has shown her the importance of finding her voice and showing that life with MS can still be full of colour, purpose and possibility.
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
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S01E08 | Aida's Story: Strength, Positivity, Challenges and NMOSD
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We’ll hear a real-life story, learn more about the symptoms, and reflect on the power of positivity and mindset when navigating health challenges.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:
Aida Fuentes is back in our podcast, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN).
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
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S01E07 | Facing NMOSD and MOGAD: More than a diagnosis
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these conditions are and the vital role that community plays in the journey.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:
Souad Mazari, patient advocate and founder of NGO Rare Mais Ensemble in France.
Aida Fuentes, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN).
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
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S01E06 | Life with MS: Overcoming Stigma & Discrimination
Welcome to Let’s Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the stigma and discrimination faced by people with multiple sclerosis and related conditions, as well as the misjudgement of symptoms when they are both visible and invisible.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Elizabeth Cunningham, a health communications consultant and Senior Communications Manager at the European Federation of Neurological Associations (EFNA). Emma Rogan, a brain health campaigner who has worked at EMSP for over a decade. She has spent her career addressing employment issues, job retention and returning to work for people diagnosed with MS and/or living with a disability. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
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S01E05 | Living with MS: Navigating Mental Health Challenges
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the emotional impact of an MS diagnosis on young people. Our guests share personal experiences, tips on asking for help, the importance of small daily victories and support, and much more.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Yolanda Higueras, a PhD neuropsychologist with over 20 years of experience who has collaborated with EMSP on several occasions, including the previous edition of the Young People’s Festival. Janneke Knol is a member of the Young People’s Network (YPN) from the Netherlands, where she also coordinates the Youth Group within the national MS society. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
Welcome to 'Let's Talk MS' a podcast series created by young minds for young minds and proudly presented to you by the European Multiple Sclerosis Platform.
In this podcast, we unpack the intricacies of living life as a young adult while navigating the challenges that come with Multiple Sclerosis (MS) and MS-related disorders (like NMO and MOGAD). From dating to nutrition or dealing with the MS stigma, we navigate it all through expert insights and personal stories.
This podcast is a project of the European Multiple Sclerosis Platform. This activity was co-founded by Merck, Roche, Sanofi-Genzyme, Novartis, Horizon Therapeutics and Janssen who do not have any influence on the content of the project and their financial support does not constitute endorsement by EMSP of any of the companies’ products or services. We thank them for their generosity and support.
You can support our Podcast at https://www.patreon.com/emsp
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