S01E05 Living with MS: Navigating Mental Health Challenges
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the emotional impact of an MS diagnosis on young people. Our guests share personal experiences, tips on asking for help, the importance of small daily victories and support, and much more.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Yolanda Higueras, a PhD neuropsychologist with over 20 years of experience who has collaborated with EMSP on several occasions, including the previous edition of the Young People’s Festival. Janneke Knol is a member of the Young People’s Network (YPN) from the Netherlands, where she also coordinates the Youth Group within the national MS society. Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon. Stay tuned and thank you for being part of our community!
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37:13
S01E04 | Parenting with MS: Pregnancy and Family Planning
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll talk about family planning, pregnancy and what comes after when you have the baby, learning the importance of expressing your self and don’t be afraid to talk and ask your questions to healthcare specialists.
Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Vicki Mathews, a nurse from the UK who has dedicated her career to the care of MS, as well as two members of the Young People’s Network: Iris Magnúsdóttir from Iceland, who has recently become a mom, and Nik Miskovic from Slovenia, a father of two.
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon.
Stay tuned and thank you for being part of our community!
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56:37
S01E03 | MS & The Power of Community
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll explore the power of community and why people with MS need each other to foster a sense of resilience, advocate for change and create a sense of belonging.
Alongside host Simina Peterfi, we introduce our guests Tania Pilz: a youth advocate, member of the EMSP’s Young People’s Network, content creator and the founder of the first International Multiple Sclerosis Community in Austria. She will be joined by Amy Thompson, founder & CEO of MS Together, winner of National Diveristy Award, freelance content creator and disability advocate.
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon.
Stay tuned and thank you for being part of our community!
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40:36
S01E02 | Heart-to-Heart: MS, Communication, and Relationships
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In our latest episode, "Heart-to-Heart: MS, Communication, and Relationships" we continue our exploration into life with MS and related disorders.
Join host Simina Peterfi and guests Moira Tzitzik, Nadja Stanojevic, and Viivi Vesala as we discuss the intricacies of communication and relationships. From navigating intimate conversations to dating and disclosure, this episode sheds light on the challenges and triumphs faced by those living with MS. Through expert insights and personal stories, this podcast offers a space to openly address the complexities of relationships.
Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon.
Stay tuned and thank you for being part of our community!
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S01E01 | Unveiling Intimacy: How MS Impacts Sexuality
Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform. In our debut episode, "Unveiling Intimacy: How MS Impacts Sexuality," we navigate the complexities of MS and its effects on intimacy.
Join host Simina Peterfi and guests Moira Tzitzik, Nadja Stanojevic, and Viivi Vesala as we delve into topics ranging from physical changes to coping mechanisms and building positive body image. Through expert insights and personal narratives, this podcast provides a safe space to tackle intimate aspects of life with MS and other related disorders.
Follow the project on Instagram and Twitter @eumsyouth for more engaging conversations. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS.
If you enjoy our podcast and want to support our work, you can do so on Patreon.
Stay tuned, and thank you for being part of our community!
Welcome to 'Let's Talk MS' a podcast series created by young minds for young minds and proudly presented to you by the European Multiple Sclerosis Platform.
In this podcast, we unpack the intricacies of living life as a young adult while navigating the challenges that come with Multiple Sclerosis (MS) and MS-related disorders (like NMO and MOGAD). From dating to nutrition or dealing with the MS stigma, we navigate it all through expert insights and personal stories.
This podcast is a project of the European Multiple Sclerosis Platform. This activity was co-founded by Merck, Roche, Sanofi-Genzyme, Novartis, Horizon Therapeutics and Janssen who do not have any influence on the content of the project and their financial support does not constitute endorsement by EMSP of any of the companies’ products or services. We thank them for their generosity and support.
Ireland