Heads Up

In this inspiring episode of Heads Up podcast, our host Dr Katy Munro is joined by Amy Mowbray and Lily Earle, two women who transformed their lives after years of living with chronic migraine and debilitating symptoms. Together, they share their personal recovery journeys and discuss how brain training, pain reprocessing therapy, somatic tracking and self-compassion helped them break free from cycles of fear, sensitisation and disability.
Amy and Lily explain how understanding the brain-body connection changed their relationship with pain, reduced anxiety around migraine attacks and helped them regain confidence, independence and joy. They also offer practical insights into techniques that listeners can explore for themselves.
This conversation is filled with hope, compassion and evidence-informed discussion, reminding anyone living with chronic migraine that recovery is possible.
 
 
 
Disclaimer: 
The Heads Up podcast is provided for general information only. It is not intended to amount to medical advice on which you should rely or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. The National Migraine Centre is not responsible for the views of those featured on this podcast and does not endorse, approve, or certify their recommendations or opinions, and information from this podcast should not be referenced in any way to imply such approval or endorsement. No material within this podcast is intended to be a substitute for medical advice, diagnosis or treatment. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of information provided in this podcast.
Do not begin a new medical regimen, or ignore the advice of a medical professional, as a result of information expressed in this podcast, this website or from any of the sources of information to which we may link. By accessing this podcast, you acknowledge that the National Migraine Centre makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this podcast. Any hyperlinks or references are provided for your convenience & information only. We have no control over third party websites and accept no legal responsibility for any content, material or information contained in them.

What does it take to kayak the entire British coastline solo while your partner manages chronic migraine from a motorhome on shore? In this first episode of series eight of Heads Up, Dr Katy Munro sits down with Nicola and Dominic Gribbin for an honest and inspiring conversation that covers far more than adventure.
Nicola has lived with migraine since childhood, from episodic attacks during school exams at sixteen, to chronic daily migraine and the added challenge of vestibular migraine. She shares her decades long journey through medications, including the pitfalls of codeine and the life changing arrival of anti CGRP treatment Vyepti, alongside the things that have helped her most: hypnotherapy, coastal meditations, and the unexpected creative outlet of writing her debut fantasy novel. Silent Curse.
Dominic is a TV cameraman and Nicola's husband of over two decades. He reflects on what it really means to be a partner to someone living with chronic pain, talking openly about flexibility, relationship dynamics and choosing to stay positive. Together they are preparing to take on a 2,300-mile kayak circumnavigation of mainland Britain, raising funds for the National Migraine Centre, Parkinson's UK and the Atrial Fibrillation Society.
 
Follow their journey on Youtube https://www.youtube.com/@EdgeofBritain
Donate here: https://givewheel.com/fundraising/15091/edge-of-britain/
 
 
 
 
 
Disclaimer: 
The Heads Up podcast is provided for general information only. It is not intended to amount to medical advice on which you should rely or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. The National Migraine Centre is not responsible for the views of those featured on this podcast and does not endorse, approve, or certify their recommendations or opinions, and information from this podcast should not be referenced in any way to imply such approval or endorsement. No material within this podcast is intended to be a substitute for medical advice, diagnosis or treatment. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of information provided in this podcast.
Do not begin a new medical regimen, or ignore the advice of a medical professional, as a result of information expressed in this podcast, this website or from any of the sources of information to which we may link. By accessing this podcast, you acknowledge that the National Migraine Centre makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this podcast. Any hyperlinks or references are provided for your convenience & information only. We have no control over third party websites and accept no legal responsibility for any content, material or information contained in them.

Spotlight Series | Heads Up Podcast
What happens when cluster headache and pregnancy collide? In this episode, Daisy joins our host Dr Katy Munro to talk honestly about managing attacks during pregnancy and with a toddler, navigating medication decisions, and the importance of specialist support for anyone planning a family.
For more information visit:
National Migraine Centre: www.nationalmigrainecentre.org.uk
OUCH UK: www.ouchuk.org
https://cks.nice.org.uk/topics/headache-cluster/
Heads Up Episode on Pregnancy and Breastfeeding: https://headsup.libsyn.com/headaches-during-pregnancy-and-breastfeeding
 
*Disclaimer*
This podcast episode contains discussions about cluster headaches, including topics that may touch upon sensitive subjects such as mental health and suicide. While we strive to provide informative and supportive content, we acknowledge that these discussions may be triggering for some listeners. If you or someone you know is struggling with mental health issues or experiencing thoughts of self-harm or suicide, we urge you to seek support from a qualified healthcare professional or your GP. For emergency call 999 helpline immediately. Your mental health and well-being are important, and help is available.
 
Listener discretion is advised.
The Heads Up podcast is provided for general information only. It is not intended to amount to medical advice on which you should rely or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. The National Migraine Centre is not responsible for the views of those featured on this podcast and does not endorse, approve, or certify their recommendations or opinions, and information from this podcast should not be referenced in any way to imply such approval or endorsement. No material within this podcast is intended to be a substitute for medical advice, diagnosis or treatment. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of information provided in this podcast.
Do not begin a new medical regimen, or ignore the advice of a medical professional, as a result of information expressed in this podcast, this website or from any of the sources of information to which we may link. By accessing this podcast, you acknowledge that the National Migraine Centre makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this podcast. Any hyperlinks or references are provided for your convenience & information only. We have no control over third party websites and accept no legal responsibility for any content, material or information contained in them.

Spotlight Series | Heads Up Podcast
Cluster headache can affect every part of a person's life, including their rights at work. In this episode, our host Dr Katy Munro is joined by Mike Smalley who has had Cluster Headache since the age of 14. Drawing on his experience as a former union representative, Mike discusses what the Equality Act 2010 means for cluster headache patients as this is recognised as a disability and what protections are available. Mike is an admin on a patient support forum.
For more information: 
http://www.facebook.com/groups/clusterheadacheuk
https://ouchuk.org/reasonable-adjustments
https://cks.nice.org.uk/topics/headache-cluster/
 
*Disclaimer*
This podcast episode contains discussions about cluster headaches, including topics that may touch upon sensitive subjects such as mental health and suicide. While we strive to provide informative and supportive content, we acknowledge that these discussions may be triggering for some listeners. If you or someone you know is struggling with mental health issues or experiencing thoughts of self-harm or suicide, we urge you to seek support from a qualified healthcare professional or your GP. For emergency call 999 helpline immediately. Your mental health and well-being are important, and help is available.
 Listener discretion is advised.
The Heads Up podcast is provided for general information only. It is not intended to amount to medical advice on which you should rely or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. The National Migraine Centre is not responsible for the views of those featured on this podcast and does not endorse, approve, or certify their recommendations or opinions, and information from this podcast should not be referenced in any way to imply such approval or endorsement. No material within this podcast is intended to be a substitute for medical advice, diagnosis or treatment. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of information provided in this podcast.
Do not begin a new medical regimen, or ignore the advice of a medical professional, as a result of information expressed in this podcast, this website or from any of the sources of information to which we may link. By accessing this podcast, you acknowledge that the National Migraine Centre makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this podcast. Any hyperlinks or references are provided for your convenience & information only. We have no control over third party websites and accept no legal responsibility for any content, material or information contained in them.

Spotlight Series | Heads Up Podcast
Isobel West has lived with cluster headache since the age of fifteen. Misdiagnosed for years and left to advocate for herself, she eventually found her way to the correct diagnosis at twenty-one. Now she is channeling that experience into a PhD at Kings College London, investigating the brain mechanisms behind the condition through studying human post-mortem brain tissue donated by individuals who lived with cluster headache and generously donated their brains to research, in collaboration with King's College London. In this episode, she joins our host, Dr Katy Munro, to talk about what it means to be both a patient and a researcher, why diagnosis takes so long, and what her work could one day mean for others living with cluster headaches.
https://cks.nice.org.uk/topics/headache-cluster/
https://ouchuk.org/advice-line
*The reference to the study Isobel quoted is here:
Frederiksen HH, Lund NL, Barloese MC, Petersen AS, Jensen RH (2020) Diagnostic delay of cluster headache: A cohort study from the Danish Cluster Headache Survey. Cephalalgia 40(1):49–56. 10.1177/0333102419863030. 
DD of 18.8 years in age of onset below 20 yrs
DD of 5.4 years in age of onset 20-40 yrs
DD of 2.1 years after 40 yrs.*
*Disclaimer*
This podcast episode contains discussions about cluster headaches, including topics that may touch upon sensitive subjects such as mental health and suicide. While we strive to provide informative and supportive content, we acknowledge that these discussions may be triggering for some listeners. If you or someone you know is struggling with mental health issues or experiencing thoughts of self-harm or suicide, we urge you to seek support from a qualified healthcare professional or your GP. For emergency call 999 helpline immediately. Your mental health and well-being are important, and help is available.
 
Listener discretion is advised.
The Heads Up podcast is provided for general information only. It is not intended to amount to medical advice on which you should rely or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. The National Migraine Centre is not responsible for the views of those featured on this podcast and does not endorse, approve, or certify their recommendations or opinions, and information from this podcast should not be referenced in any way to imply such approval or endorsement. No material within this podcast is intended to be a substitute for medical advice, diagnosis or treatment. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of information provided in this podcast.
Do not begin a new medical regimen, or ignore the advice of a medical professional, as a result of information expressed in this podcast, this website or from any of the sources of information to which we may link. By accessing this podcast, you acknowledge that the National Migraine Centre makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this podcast. Any hyperlinks or references are provided for your convenience & information only. We have no control over third party websites and accept no legal responsibility for any content, material or information contained in them.