The Now What Podcast: Young Adults and Epilepsy

In an era where social media can be polarizing, how do we use it for good?This episode welcomes Dr. Jessica Lowe, a double board-certified neurologist and epileptologist who is nationally recognized for her innovative public education efforts as “Doctor Brain Barbie.” With over 175,000 followers, she uses social media to make neurology accessible, accurate, and empowering for patients and families.Also joining the conversation is Miles Levin, an award-winning writer, director, and disability advocate whose work has helped change how epilepsy is portrayed on screen. His film Under the Lights has become a movement to break the stigma surrounding epilepsy.This episode explores how social media can help reduce stigma, share reliable information, and build community for people living with epilepsy — while also navigating its challenges responsibly. Thank you to our sponsor UCB for making this podcast possible.For more resources and ways to get involved, visit thecameronboycefoundation.org.Follow Dr. Jessica Lowe: https://www.instagram.com/doctorbrainbarbie/?hl=enFollow Miles: https://www.instagram.com/underthelightsfilm/?hl=enGet involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok

Epilepsy can feel isolating, and the lack of community often makes it even harder.In this episode, members of our Young Adult Advisory Board — Madison Parham, Serina Lall, Katie Price, and Mia Randell — come together to talk openly about their experiences with epilepsy, why community is so important, and the advice they’d offer to others navigating similar paths.This conversation centers on connection, shared experience, and the power of knowing you’re not alone.Thank you to our sponsor UCB for making this podcast possible.For more resources and ways to get involved, visit thecameronboycefoundation.org.Get involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok

Epilepsy can feel isolating, and the lack of community often makes it even harder.In this episode, members of our Young Adult Advisory Board — Madison Parham, Serina Lall, Katie Price, and Mia Randell — come together to talk openly about their experiences with epilepsy, why community is so important, and the advice they’d offer to others navigating similar paths.
This conversation centers on connection, shared experience, and the power of knowing you’re not alone.
Thank you to our sponsor UCB for making this podcast possible.For more resources and ways to get involved, visit thecameronboycefoundation.org.
Get involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok

Epilepsy can feel isolating, and the lack of community often makes it even harder.In this episode, members of our Young Adult Advisory Board — Madison Parham, Serina Lall, Katie Price, and Mia Randell — come together to talk openly about their experiences with epilepsy, why community is so important, and the advice they’d offer to others navigating similar paths.This conversation centers on connection, shared experience, and the power of knowing you’re not alone.Thank you to our sponsor UCB for making this podcast possible.For more resources and ways to get involved, visit thecameronboycefoundation.org.Get involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok

In this episode, Karan welcome's David Randell, dad to Mia Randell and a dedicated parent advocate, for an honest conversation about parenting a young adult with epilepsy.
David shares what he’s learned navigating fear, uncertainty, and growth as a parent, and how the journey evolves as your child becomes more independent. From early diagnosis to young adulthood, this episode explores the emotional realities parents face, the lessons that stick, and how families can support their children while also learning to let go.
Whether you’re a parent of a child with epilepsy, supporting a young adult through this transition, or looking to better understand the caregiver perspective, this conversation offers insight, empathy, and reassurance.
Thank you to our sponsor UCB for making this podcast possible.
For more resources and ways to get involved, visit thecameronboycefoundation.org.
Get involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok