The Role of Patient Organisations: Dietitian Suzanne Ford's Take on Season 2
Dietitian & Advisor to the NSPKU, Suzanne Ford, wraps up season 2 and explores how patient organisations can support individuals and families living with a metabolic disorder. In this episode, we discuss challenges, education, peer connection, and how individuals can get involved in ways that genuinely help. This conversation will resonate with newly diagnosed and long time community members alike. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.#PKU #Phenylketonuria #TYR #Tyrosinaemia #HCU #Homocystinuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices
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A Rare Diagnosis of Tyrosinaemia: Lorraine & Harry Spillane on Family Life & Empowerment
Tyrosinaemia (TYR) is incredibly rare, and when your child receives a diagnosis, everything changes. Lorraine and Harry Spillane reflect on their experiences in the early days, building routines that work and staying positive as a family. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.#Tyrosinaemia #Tyrosinemia #TYR #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices
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PKU Diet for Life Study: Max and Harald Share a Doctor and Patient's Perspective
Dr Maximilian Pichler and Harald Schossmann, an adult with PKU, discuss the Austrian 'Back to Clinic' study and initiative. This episode covers Harald's lived experience of returning to the PKU diet, as well as a healthcare professional’s evidence based view and explanation of the study's findings.Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.#PKU #Phenylketonuria #DisordersOfProteinMetabolism #PKUDiet #ReturnToDiet #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices
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PKU and Travel: Nicole Weber on Life as a Travel Nurse and Low Protein Living
Travel and PKU definitely can coexist. In this episode, Nicole Weber shares practical strategies for flying, eating out and staying on plan, all while building confidence and community on the road. Perfect for anyone managing phenylketonuria (PKU) or any other metabolic disorder who wants unique tips that actually work. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.#PKU #Phenylketonuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices
Living with homocystinuria (HCU) has been a journey for Éimear. In this inspiring episode, she talks openly about acceptance, community, and turning personal experience into effective advocacy. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.#HCU #Homocystinuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices
Welcome to Vitafriends Voices - A Vitaflo Podcast!
Join us as we chat about everything from managing diets to living well and overcoming challenges.
Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field.
Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!
Ireland