Devin Smith: "A Father's Perspective: Navigating GA1 and Family Life"
In this episode, Devin, the father of a young girl with GA1, discusses their family's journey, including managing food aversions and the emotional aspects of parenting a child with a metabolic disorder. He reassures other parents that they are not alone in this journey. Some of you may know Devin as one of our Vitaflo chefs, which he also touches on in this episode. All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.
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33:43
Annie Skidmore: "Trailblazing Research: Making an Impact Through My PhD Journey"
In this insightful episode, Annie shares her personal story of growing up with PKU while actively participating in sports. Now in her twenties, she is pursuing a PhD project designed to benefit both herself and others with PKU. She discusses how her research aims to study the combined impact of nutrition and exercise on the health of those with PKU, and her goal to develop evidence-based interventions that will improve quality of life for the community. All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.
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33:02
Daragh Nolan: "Teen Life with PKU: Embracing Independence and Positivity"
At just 16, Daragh shares his uplifting perspective on living with PKU, focusing on how he balances a social life while transitioning to independence. His positive mindset serves as an inspiration to others navigating similar challenges.All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.
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29:25
Bianca Albanese: "Living Life to the Fullest: Advice to Her Younger Self"
Bianca joins us from Australia and shares her wisdom and advice for young teens struggling with a disorder of protein metabolism. She emphasises the importance of support from family, friends and partners and encourages listeners to embrace life and all its possibilities. All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.
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39:31
Richard Farquhar: "Living Well with PKU: A Holistic Approach"
Join Richard as he reflects on his journey with PKU, exploring how the condition has shaped his experiences at different life stages. He discusses his passion for fitness while offering personal anecdotes and encouragement.All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.
Welcome to Vitafriends Voices - A Vitaflo Podcast!
Join us as we chat about everything from managing diets to living well and overcoming challenges.
Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field.
Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!
Ireland