Down Syndrome Center Podcast

• #205 - Update on Sleep Apnea

  Dr. Rachel Whelan and Dr. Ryan Soose joined the podcast today to discuss sleep apnea in both children and adults with Down syndrome.  The podcast discusses how and when to screen for sleep apnea and management options that currently are in use.   For more information on the pediatric hypoglossal nerve stimulator trial discussed on the podcast, go to: https://clinicaltrials.gov/study/NCT04801771?cond=Down%20syndrome,%20sleep%20apnea&rank=10 If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

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• #204 - Down Syndrome Medical Interest Group (DSMIG) and Project Echo

  Dr. Brian Chicoine joined the podcast to talk about the Down Syndrome Medical Interest Group (DSMIG) and Project Echo.   For more information on DSMIG: For more information on Project Echo:     If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

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• #203 - Child Life Specialists

  Child life specialists are specially trained to prepare children and family members for medical experiences and teach techniques to help reduce stress and anxiety.  Stephanie Colaberardino, MS, CCLS, CIMI joined the podcast today to talk about how a Child Life Team can be helpful for patients with Down syndrome. Children's Hospital of Pittsburgh Child Life  https://www.chp.edu/our-services/child-life/specialist-assistant Children's Hospital of Pittsburgh Adaptive Care Team https://www.chp.edu/for-parents/support-services/family-support-services   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

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• #202 - Reflections From An Adult Sibling

  Author Debbie Miller joined the podcast today to discuss her life experiences with her sibling Rick.  Debbie has written a memoir called Raising Ricky which can be found at: https://a.co/d/4ILqLyD (book and audiobook)   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

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• #201 - Shoes and Orthotics (with Dr. Sarah Mann)

  Dr. Sarah Mann joined the podcast today to discuss foot issues in Down syndrome and the role for supportive shoes and orthotics.   For more information on the Mann Method Therapy Network: https://www.mannmethodpt.com If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected]. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

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