Dystonia Matters Podcast

• Dystonia Matters: Karen's story

  In our first episode of season five, Karen sits down with Dayna to share her story with warmth and humour. She talks about her journey living with dystonia, from being born with the condition due to a possible birth injury and facing a long road to diagnosis in her 30s, to breaking down barriers in her career after receiving her diagnosis. View the transcript of Karen's story here.If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠⁠⁠[email protected]⁠⁠⁠Visit ⁠www.dystonia.org.uk⁠  for further information and details on becoming a Dystonia UK member.Email: ⁠⁠⁠[email protected]⁠⁠⁠ for any questions or topic suggestions you have for future episodes.This show is brought to you by Dystonia UK.Follow us on X, Facebook, LinkedIn, Instagram and TikTok @DystoniaUK.Hosted by: Dayna Ferdinandi, Director of Fundraising and CommunicationsPost Production: Heather Pownall of Heather’s Media Hub Ltd.

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• Dystonia Matters: Lola's Story

  After hearing about Lola's brilliant football stadium fundraiser, Dayna couldn't wait to chat to her for the last episode of season four. Lola talks about her grandad's experiences of living with dystonia and how this has affected her, as well as the difficulties of going out and about in society when living with dystonia and her determination to raise awareness about the condition to help her grandad and others like him. If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠⁠⁠[email protected]⁠⁠⁠ Visit ⁠www.dystonia.org.uk⁠  for further information and details on becoming a Dystonia UK member. Email: ⁠⁠⁠[email protected]⁠⁠⁠ for any questions or topic suggestions you have for future episodes. This show is brought to you by Dystonia UK. Follow us on X, Facebook, LinkedIn, Instagram and TikTok @DystoniaUK. Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications Post Production: Heather Pownall of Heather’s Media Hub Ltd.  

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• Dystonia Matters: Emma's Story

  After hearing about Emma's high flying plans to do a wing walk in aid of Dystonia UK, Dayna was so excited to sit down with her on the podcast. Tune in to hear about Emma's experiences with medication and alternative therapies (including infamous cold dunks!!), the challenges of trying to get people to understand dystonia, and her dream to help others living with the condition. If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠⁠[email protected]⁠⁠ Visit www.dystonia.org.uk  for further information and details on becoming a Dystonia UK member. Email: ⁠⁠[email protected]⁠⁠ for any questions or topic suggestions you have for future episodes. This show is brought to you by Dystonia UK. Follow us on X, Facebook, LinkedIn, Instagram and TikTok @DystoniaUK. Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications Post Production: Heather Pownall of Heather’s Media Hub Ltd.  

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• Dystonia Matters: Mark's Story

  Having met Mark at many Dystonia UK events, Dayna could't wait to have him on the podcast. Tune in to hear about Mark's experiences with his local group and how he came to educate Nicky Campbell on dystonia and how much he loves Sara (without an H) all live on national radio. If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠[email protected]⁠ Visit www.dystonia.org.uk  for further information and details on becoming a Dystonia UK member. Email: ⁠[email protected]⁠ for any questions or topic suggestions you have for future episodes. This show is brought to you by Dystonia UK. Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK. Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications Post Production: Heather Pownall of Heather’s Media Hub Ltd.

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• Dystonia Matters: Jason's Story

  After a few months of trying to get together Dayna and Jason finally got to sit down and record the podcast. Jason reflects on the challenges of living with a chronic condition and how he is finding hope through alternative treatment solutions. By speaking with Dayna, Jason also experiences a transformative breakthrough towards his attitude to dystonia. Not to mention his amazing fundraising experience and how he is eager to learn more about our amazing community. If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠[email protected]⁠ Visit www.dystonia.org.uk  for further information and details on becoming a Dystonia UK member. Email: ⁠[email protected]⁠ for any questions or topic suggestions you have for future episodes. This show is brought to you by Dystonia UK. Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK. Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications Post Production: Heather Pownall of Heather’s Media Hub Ltd.

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